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Amanda Aikulola

Board of Directors



Amanda is a nurse and national advocate for those living with Ehlers-Danlos, Dysautonomia, Chiari Malformation, and related conditions. She has founded the Dysautonomia Support Network, Dysautonomia Talk, and Dysautonomia: All We Know So Far support group. Amanda has served on several Dysautonomia, Chiari, and EDS-related advisory boards and committees. Amanda earned recognition in 2017 from Facebook for her Dysautonomia and EDS support group. She is a nonprofit consultant and an advisor for the Digital Marketing Program Advisory Council at University of Southern Florida Muma College of Business.

Amanda Aikulola
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